Advancing trusted, patient-centered health data policies

HDGC Advocacy

The Coalition convenes stakeholders from across the healthcare ecosystem to promote responsible data governance through leadership on privacy, cybersecurity, interoperability, transparency, and innovation.

As AI introduces new threats to health data privacy and cybersecurity, HDGC plays a critical role in building industry consensus and engaging policymakers to strengthen the security of our healthcare system.

Cybersecurity in Healthcare: Defining Private and Public Sector Responsibility

As life-threatening and financially crippling cyberattacks increase, a new report from HLC and HLC’s HDGC, proposes a collaborative public-private framework to safeguard the healthcare system. Co-authored by Manatt, Phelps & Phillips, LLP, a multidisciplinary, integrated professional services firm, this report outlines private sector commitments and proposes public sector actions to improve our nation’s healthcare cybersecurity infrastructure.

A briefing document summarizing key takeaways from the report and framework is here.

Relevant News, Letters & Events

HLC response to Senate Finance Committee Democrats’ RFI on Drug Pricing
HLC urged Congress to preserve incentives for continued biopharmaceutical innovation while pursuing solutions that improve affordability for beneficiaries. The letter raised concerns about proposals to...
HLC and Confidentiality Coalition letter to CMS in response to the Interoperability Standards and Prior Authorization for Drugs Proposed Rule
HLC supports CMS’s plan to speed up electronic prior authorization for drugs, but asks for at least a 24 hour rollout and for decision clocks...
Confidentiality Coalition and HLC response to Health Data, Technology and Interoperability: ASTP/ONC Deregulatory Actions to Unleash Prosperity (HTI-5) proposed rule
The Healthcare Leadership Council and the Confidentiality Coalition submitted comments on the proposed HTI-5 rule supporting efforts to reduce unnecessary regulatory burdens while emphasizing that...
Confidentiality Coalition and HLC response to ASTP/ONC RFI on Accelerating the Adoption and Use of Artificial Intelligence as Part of Clinical Care
The coalition responds to ASTP RFI on the adoption and usage of AI in clinical care and urges a risk-based federal AI framework that preempts...
HLC and Confidentiality Coalition response to the White House Office of Science and Technology Policy “Regulatory Reform for Artificial Intelligence” RFI
The Healthcare Leadership Council (HLC) and the Confidentiality Coalition respond to the White House Office of Science and Technology Policy’s Request for Information on regulatory...
Confidentiality Coalition letter to House Homeland Security Committee on ransomware hearing
The Healthcare Leadership Council (HLC) and the Confidentiality Coalition submitted this letter to ASTP/ONC regarding the proposed HTI-5 rule. The letter recommends changes to the...

House and Senate Staff Remark on Data and Privacy Legislation

During a Coalition lunch meeting, we welcomed both Matthew Thomas, Counsel for the Senate HELP Committee majority, and Dante Cutrona, Chief of Staff to Congressman John Joyce, M.D. Matthew provided an overview of Senator Cassidy’s Health Information Privacy Reform Act (S. 3097), and answered questions on priorities during the remainder of the Senator’s leadership. Dante consulted with member representatives on Congressman Joyce’s SECURE Data Act (H.R. 8413), acknowledging member feedback and concerns.

Make a Difference with HDGC Membership

Our members are advancing safer and more effective health data solutions to enable better health outcomes. Membership with H-DGC enables you to join our cause to help advance health data policy solutions.